About This Event
This Rare Disease Day, HESA and AE Alliance have come together, to kick off our #AskMeAboutAE campaign, to visualize the consequences of autoimmune encephalitis.
No one understands the daily struggles like you and your caregivers. You experience the consequences of AE every day. It is important to talk about what you are struggling with and/or continue to struggle with. Knowing which outcomes are negatively impacting your quality of life, will give doctors, researchers and pharmaceutical companies, a better understanding of AE as a whole. And it can be used to drive research and drug development forward in a patient centered way.
That is why we are asking you to give a face to outcomes after AE. It is a simple as 1, 2, 3!
1. Print the brain picture;
2. Write on it what you are struggling with most;
3. Take a selfie of you holding this picture, and post to social media using the hashtag #AskMeAboutAE.
We invite both patients and caregivers to participate. HESA and AE Alliance are hosting the Building Bridges symposium on Saturday April 10th. This symposium is for physicians and medical students and will focus on the importance of a multidisciplinary approach for AE. We will share your selfies and struggles with the doctors attending, so they can see and understand how AE impacts your life.