Sudan Neurogenetics Group and Genetics Researches Society

Organized by:
Sudan Neurogenetics Group and Genetics Researches Society

Event(s) Summary

Number of Events Organized During Brain Awareness Week:

Five

Year:

2021

Type of Events Held:

  • Lecture/Briefing
  • Online/Virtual
  • Social Media Campaign
  • Workshop

Target Audiences:

  • General Public
  • Patients & Caregivers
  • Professionals
  • Seniors
  • University students

Approximate Number of People Reached:

60

Details of Major Brain Awareness Week Events/Activities:

The theme of BAW was “brain health for all”. We organized five virtual events in Arabic and English. In each webinar, we had different speakers discussing different aspects of brain health. Day 1:Part I: Increasing awareness about inherited brain disorders. Part II: Consanguinity and Genetic diseases: Challenges in Sudan Day 2:Trends in Neuroscience Research Epilepsy. Day 3: Developmental delay Craniosynostosis Neurogenesis Day 4:Neurology Research in Sudan Neurogenetic Researches in Sudan A discussion with neuroscientists/neurologists on their “personal journey into the field of neurology” – panel discussion Day 5:Neurogenetics made easy – workshop Neurodegenerative disorders Autism The goals we achieved through the program: To create a passion for research in neuroscience To build and grow professional and patient-based networks To increase awareness about brain health and disease To engage and educate the public about the inheritance, role of consanguinity, and the resulting stigma in brain disorders.

Event Planning & Publicity

Publicity Methods Used:

  • Advertisements
  • Emails
  • Posters/Flyers
  • Website
  • Social Media

Which of These Publicity Methods Was The Most Successful?

Social media. Our advertisements managed to reach a larger audience.

Resources

What other downloadable materials would you like the Foundation to provide?

  • Other

Other Downloadable Materials:

  • We would like to see the material translated into Arabic

Feedback & Keys to Success

How do you feel BAW participation benefited your organization and the local community?

We experienced a different perspective in our work: to serve a wider role in public education. The event helped to raise awareness of important challenges in the community including consanguinity and stigma linked to neurological disorders. Clinicians and undergraduate students showed interest and passion to engage in basic and clinical brain research. It emphasized the need for interdisciplinary collaboration between clinicians and scientists on national and international levels.

Please share any suggestions or lessons learned that may help others plan future events:

Advertising and promoting for the online event should start as early as possible. Pre-recording lectures might help to avoid technical issues

Did/do you like our Facebook page?

Yes

Event Photos

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Brain Awareness Week advertising poster

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Brain Awareness Week invitation poster

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One of our educational posters: Left brain vs Right brain

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Facts and myths about the brain!

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Brain Awareness Week advertising poster in Arabic

Contact Information

BAW Website:

http://ngsgroup.org/brainawarenessweek-yourbrainmatters

Contact Name:

Liena Elsayed

Contact Phone:

+966 53 716 5020

Contact Email:

Liena.elsayed@gmail.com

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